Shiloh Pepin, from Maine, USA, was born with Sirenomelia or 'mermaid syndrome': an extremely rare congenital disease meaning her legs were fused together below the hips.
She was born without a rectum or genitals, almost no large intestine and just a small piece of her kidney.
Shiloh was given just days to live. Knowing her life could be cut short at any moment, her parents, Leslie and Elmer, devoted their lives to caring for her.
Against all odds she survived and in 2009 she celebrated her tenth birthday, a milestone doctors said she would never reach.
Filmed over six months that would change her family's lives forever, this is the unforgettable story of an ordinary family living with an extraordinary condition.
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